Thriving with Cerebral Palsy: The Parents Behind a Growing Movement

Inspired by her son Theo’s cerebral palsy journey, Jessa Marmol built a community that is now changing the lives of families across the country

There’s a reason people say it takes a village to raise a child—and that village becomes even more essential when a child lives with a disability.

For many parents, cerebral palsy is a diagnosis that brings more questions than answers. It affects a child’s brain development and mobility—an everyday challenge that can leave families unsure of where to begin. Jessa Marmol, president of the Cerebral Palsy Epilepsy Family Awareness Support Group PH Inc (CEFASGPH), knows this feeling all too well.

Her Son, Her Strength

Jessa shares that it was her son, Theo, who became her guiding light as she built the community.

“Early in our journey, I realized that individuals with cerebral palsy are often underserved in many areas—awareness, access to healthcare, medicines, and emotional or community support. When you lack information, coping becomes even more challenging,” she tells Modern Parenting.

Seeing the struggles of families like hers, forming a support group felt instinctive.

“We envisioned a space where families could share knowledge, offer support, and feel safe. Our goal is to build a community that empowers and uplifts—providing financial assistance following clear criteria, emotional and moral support, and access to programs and networks that truly help families.”

Since its founding, CEFASGPH has held countless talks, workshops, and seminars to guide parents and caregivers caring for children with cerebral palsy.

 “With the help of supportive Local Government Units, we’ve reached as far as Bukidnon—thanks to the LGU who went above and beyond for the CP community nationwide,” Jessa adds.

But like any meaningful cause, the work is far from over.

More Action Needed for People with Cerebral Palsy

One of the group’s most urgent appeals is the need for programs specifically designed for individuals with cerebral palsy—something Jessa hopes the government will prioritize.

“Our main challenge is finances. As much as we want to reach everyone, our budget is limited,” she explains.

The group is immensely grateful for the support of private sponsors, partners, and advocates, including musicians and podcasters Jim Bacarro and Saab Magalona and former beauty queen Cassandra Chan, who has passionately championed the cause.

Beyond financial constraints, the group also works to dismantle misconceptions that persist in society.

“One major misconception we continue to correct is that cerebral palsy is a sickness—it’s not. It is a condition, and it is not contagious,” Jessa clarifies.

“A person with cerebral palsy is diverse-abled. They are not defined by their diagnosis. They can be self-sufficient. They can play, dance, sing, work, and achieve so much.”

And with advancements in technology and therapy, families have more reasons to hope.

Continuing the Fight for Awareness

Despite meaningful progress, Jessa emphasizes that awareness remains an ongoing battle.

“There is a strong need for one-on-one training on how to properly support and handle individuals with cerebral palsy,” she says. “Each case is unique, so guidance must be personalized. This ensures that caregivers can offer the best possible care.”

Thanks to the group’s network of therapists, many members have received free therapy and consultations. At a recent gathering at the SM North EDSA Skydome, doctors provided on-site evaluations and shared possible treatments families can explore for their loved ones.

For the Caregivers Who Keep Going

CEFASGPH is not only for individuals with cerebral palsy—it is equally a sanctuary for their caregivers, who pour their time, strength, and hearts into daily care.

The group continues to champion its project #IkotPilipinasParaSaMgaBatangMayCerebralPalsy, which they aim to bring to different parts of the country.

Jessa hopes families remain committed to understanding their child’s unique needs.

“Learn your child’s case. Understanding their specific needs will guide you in giving the right support. And don’t let outside comments discourage you. People will always have something to say—good or bad—but the choice to listen will always be ours.”

She knows the emotional weight caregivers carry—because she’s lived it herself.

“There will be moments when you question your faith. ‘Why me?’ I’ve asked myself that countless times. But over time, I learned to embrace my situation. It’s normal to question—but don’t dwell too long. Move forward one step at a time.”

Looking Toward a More Inclusive Future

Jessa’s hope is simple but powerful: for the government and institutions to step up and provide more support to the cerebral palsy community.

“Access to essential services would make a tremendous difference,” she says.

But even with limited resources, the greatest gift families can receive is knowing they are not alone.

“Having a support system—knowing there are people who understand your journey—plays a big role in helping parents and caregivers stay strong.”

Through CEFASGPH, Jessa and her community continue to prove that when families come together, they don’t just survive—they thrive.

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